Widening the definition of work: a recovery-based
model encourages consumers to adopt work strategies that work best for
them.
by Roth, Morris L.^Sexton, Paul D.^Liebert, Jonathan A.^Smith,
Jennifer Howard
There is a dramatic and disturbing disconnect within the mental
health community when it comes to vocational programming. According to
the President's New Freedom Commission on Mental Health's
final report, an incredible 90% of mentally disabled individuals do not
work, making this group the most unemployed of any group with
disabilities. (1) However, survey research suggests that a great
majority (almost three-fourths) of these individuals possesses both the
desire and the potential ability to work. (2)
This set of incongruent statistics is troubling, since further
research on mental health points to vocational activity as one of the
most critical components of the recovery process. (3) Mental healthcare
consumers regularly identify work as both a goal and a motivating force
in recovery. (4) Recovery from mental illness requires many elements
including "developing hope, moving beyond preoccupation with
one's illness, forging a new identity, and pursuing meaningful life
activities." (5) These critical ingredients are found in vocational
activities and achievements. Vocational activities allow consumers to
take inventory of, and stock in, their set of competencies and apply
them in meaningful, efficacious ways. This helps to establish an active,
enduring, functional sense of self, which provides the necessary
foundation upon which the "work" of recovery can be
manifested. (6)
The IPS Model
What mental health professionals mean by "work" seems to
vary in both definition and scope. For many years, work for individuals
with severe mental illness was synonymous with participation in
sheltered workshops; segregated groups of disabled individuals worked
together on tasks chosen and supervised by mental health staff, usually
for less than minimum wage. A very different, but equally narrow,
concept of work was introduced in the mid-1990s with the Individual
Placement and Support (IPS) model of vocational rehabilitation.
[FIGURE 1 OMITTED]
IPS programs solely emphasize client-driven "competitive
employment," defined as regular, supervised work for at least
minimum wage pay in integrated (i.e., including nondisabled coworkers)
settings. (7,8) Prevocational training and education are deemphasized
and discouraged, and any vocational activities other than competitive
employment are considered suboptimal. Proponents of the IPS model state:
Some clients will inevitably need to transition through volunteer jobs
or other prevocational activities. Nevertheless, since expectations
tend to provide a self-fulfilling prophecy, and low expectations
(e.g., sheltered employment) may result in clients failing to fulfill
their wishes and potentials, IPS focuses consistently on competitive
work as the ultimate goal. (7)
Although the IPS model has been linked to a variety of positive
vocational outcomes (e.g., hours worked, wages earned, satisfaction with
finances), it consistently has shown little, if any, effect on clinical
outcomes (e.g., self-esteem, quality of life, global functioning,
reduced psychiatric symptoms, and rehospitalization rates). (8-11) Yet
according to the Center for Reintegration, any meaningful employment
experience provides five critical factors that promote mental
well-being:
[FIGURE 2 OMITTED]
* time structure;
* social contact and affiliation;
* collective effort and purpose;
* social and personal identity; and
* regular activity. (12)
While these factors are present in a "competitive" work
setting, they also are likely to be present in other vocational
settings. The IPS model's narrow definition of work may
unnecessarily exclude some consumers who might clinically benefit from
alternative forms of vocational activities.
The ACCESS Model
A model with a much broader definition of work is making
significant vocational and clinical strides for a group of mental
healthcare consumers in Colorado Springs. Incorporated in 1991, Aspen
Diversified Industries (ADI) is an affirmative business affiliated with
Pikes Peak Behavioral Health Group. ADI is dedicated to assisting
disadvantaged, disabled, and nondisabled people by creating a diverse
set of meaningful vocational opportunities for those who may lack such
opportunities in the existing job market. Unlike many vocational
programs, in which placement is both the focus and the benchmark for
"success," ADI uses the recovery model to steer its
evidence-based practices. Hence, ADI's ACCESS model provides
Alternative Avenues of Community Placement Chosen by Clients, to
promote: Empowerment, Skills Improvement, and Self-Sufficiency (figure
1).
The hallmark of ADI's ACCESS model lies in its broad array of
opportunities for mental healthcare consumers interested in some type
(or types) of community integration and involvement. Because ADI offers
such a wide variety of avenues to its consumers, it is able to reach a
larger, more diverse set of mental healthcare consumers than more
restricted vocational programs.
Like the IPS model, ADI's ACCESS model encourages competitive
employment but only for the subset of consumers interested in
independent, supervised work for pay in the community. ADI also offers
and encourages other prevocational, vocational, and community
opportunities such as:
* traditional job-seeking skills training;
* on-the-job training;
* support for continued education;
* volunteer opportunities; and
* more supported employment opportunities within ADI's own
line of services (e.g., custodial, food services, maintenance, etc.).
These five vocational areas are equally encouraged, for it is
presumed that each can lay the foundation for ADI's ultimate
objective--recovery.
To test this assumption, Applied Research Solutions, Inc., a
research and consulting firm, was contracted to empirically evaluate the
clinical impact of consumer participation across ADI's five
vocational programs. Preprogram consumer data were compared to
post-program data for 49 ADI consumers who also were consumers at Pikes
Peak Mental Health (PPMH) Center. These numbers then were compared to a
demographically and clinically comparable set of 47 PPMH consumers who
did not participate in ADI's programs.
Changes in the dependency on PPMH services were tracked and
analyzed for both groups, as were changes in psychological health, using
Colorado Client Assessment Records (CCARs). The CCAR is completed by
primary therapists for all persons who present for behavioral health
services at the time of initial enrollment, annually thereafter for the
duration of treatment, and at disenrollment. Because consumers typically
have multiple CCAR scores, this instrument is ideal for tracking
demographic information, diagnosis, and mental health changes.
For each consumer, preprogram and post-program averages were
calculated to test for significant changes across time. For the
inpatient data, preprogram scores were computed by dividing the number
of days hospitalized before program participation by the number of
months transpiring between initial (mental health center) intake and
program start date. Post-program scores were computed by dividing the
number of days hospitalized after program start dates by the number of
months transpiring between program start and the date of each
client's last hospitalization. A similar procedure was followed for
the CCAR data. CCAR scores collected prior to program participation were
averaged to compute a preprogram score for each consumer; CCAR scores
collected after program start dates were averaged to compute
post-program scores.
[FIGURE 3 OMITTED]
Findings revealed that ADI consumers showed meaningful and
significant improvements with respect to psychological functioning
(overall problem severity decreased; overall level of functioning
increased), as well as a reduced dependency on mental health services,
particularly inpatient (hospitalization) services. This resulted in an
annual average cost savings of more than $7,500 per consumer! Figures 2
and 3 display how these patterns of psychological improvement and
reduced treatment needs surfaced across all groups of ADI consumers, not
just those in the external (i.e., competitive) work program. These
changes did not surface for the comparison group.
The fact that all ADI groups showed meaningful clinical
improvements lends strong preliminary support to ADI's ACCESS model
over more restricted models of vocational rehabilitation. The ACCESS
model casts a wide net and demonstrates that a number of diverse
vocational avenues lead to improved functioning and wellness. The ACCESS
model might have applicability outside of the mental health community as
well (e.g., for people with physical disabilities, disadvantaged youths,
etc.).
ADI's goal is not solely competitive employment and placement.
Rather, it is for consumers to achieve their highest potential while
working toward self-sufficiency in any one of a variety of ways.
Consumers are "working toward recovery" when they see
themselves as self-directed agents contributing purposefully to
objectives that focus on bettering both themselves and their surrounding
communities. These findings suggest that it may be wise for mental
health and vocational rehabilitation experts to think broadly when it
comes to encouraging their consumers to work.
Morris L. Roth, MSW, is President and CEO of Pikes Peak Behavioral
Health Group in Colorado Springs, which includes Pikes Peak Mental
Health Center, Pikes Peak Integrated Solutions, Pikes Peak Foundation
for Mental Health, Connect Care, and Aspen Diversified Industries (ADI).
He can be reached at morrisr@ppbhg.org.
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