MOST REMEMBER HOLLY ROBINSON PEETE FROM HIT television shows such
as the police drama 21 Jump Street or the sitcom Hangin' with Mr.
Cooper, but today the actress focuses on events occurring away from the
camera. In honor of her late father, who succumbed to Parkinson's
disease, she and husband, Rodney Peete, an ex-NFL quarterback, founded
the HollyRod Foundation (www.hollyrod.org) in 1997. The organization
helps families financially impacted by Parkinson's disease and
other illnesses. Just two years later, the 43-year-old received more
life-changing news: her son, Rodney Jr., was diagnosed with autism, a
disorder that impairs communications and social development.
After a brief bout with denial, the proud mother says she switched
from survival to conquering mode--and it worked. Today, nearly 10 years
later, her family has beaten the odds. Despite an initially dismal
prognosis, Rodney Jr. is now a preteen who attends a mainstream school
and is able to express his emotions. While fame and fortune may have
aided the clan, Robinson Peete attributes her son's successful
progress to one thing: determination. BLACK ENTERPRISE caught up with
Robinson Peete to discuss fighting for her child to have a normal life
and how other black families can do the same.
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What was it like first learning of your son's autism?
Wow--not the best day! Devastating and hopelessness are two words
that come to mind. There was no "Welcome to Autism" manual. We
felt alone and lost. We were told a lot of "nevers," such as
he will never be accepted in a mainstream school and he will never say
"I love you" unprompted.
What type of support system did you find or have to put in place?
I expected my mom and husband to be on the same page with me, but
initially they weren't there yet. I gave an ultimatum: Get on board
or get gone! I just couldn't do it alone. I'm lucky because
they came around quickly. There is an 80% divorce rate among families
dealing with autism.
Unfamiliarity may have contributed to your husband and
mother's initial response. Today, is everyone offering encouraging
sentiments?
I have had members of my own family say that they still aren't
really able to admit that RJ even has autism because of their pride and
ignorance. They were not thrilled about us speaking out on it but since
then, we have been able to help force this issue to the front burner. We
have ignited dialogue.
Often in the black community, discussing mental developmental
issues is taboo. How can we overcome this stigma?
We must embrace mental health as a community and break away from
this cultural fear of taking care of ourselves mentally. It is very
dangerous to ignore autism due to "social embarrassment." I am
so fortunate to have been raised without such hang-ups. [Waiting for
treatment] can cost your child valuable intervention time that you
cannot ever recoup.
Do African Americans have the same resources and support as other
ethnic groups dealing with autism?
We have the same access to info but we don't investigate it
like we should. Our cultural "pride" keeps us from talking
about it more. Get out of denial quickly and advocate like crazy for
your child.
What am your top tips for parents caring for an autistic child?
Be sure to look into dietary changes. And know that the Internet is
your friend. I scoured the Internet, went to seminars, and talked to
other parents dealing with autistic children. Intensive and early
intervention is key. I really like Vital Interventions Accessible
(www.vianow.org); they advocate biomedical treatments that we have had a
lot of success with.
What should parents who have a recently diagnosed child know?
There is hope and a lot more treatment options available, as well
as funds accessible to pay for them. [In the '90s], the treatment
suggested was not very comprehensive. We were only told about your basic
intervention therapies, such as individual treatments, with no mention
of diet or environmental contributors. Today there is so much more.
COPYRIGHT 2008 Earl G. Graves Publishing Co.,
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